The Science Hub for the ALS Community

North Star ALS is the independent science hub connecting patient voices to research progress—clarifying treatment options, elevating lived experience, and guiding you through ALS with care.

Who We Are

Clear research. Sound guidance.

North Star ALS guides patients and caregivers through an overwhelming medical landscape with clear, unbiased educational programs. By translating science into accessible knowledge, it helps people make informed decisions, amplify their voices, and actively shape the future of ALS treatments.

Who we are

North Star is a science-driven organization helping people affected by ALS navigate the complex research landscape with clarity and purpose.

What we do

North Star builds tools and strategies that translate complex science into actionable insight, improve access to research and care, and connect stakeholders across the research ecosystem.

Why we do it

Because scientific progress only matters if it reaches people in time. North Star exists to align scientific innovation with real patient needs, and to turn uncertainty into direction.

A community
shaping the future of ALS science, together.

Explore North Star ALS Educational Programs

All programs are created in partnership with people affected by ALS. Input from a community advisory board consisting of people living with ALS, caregivers, the genetic ALS community, and researchers will shape our programs.

North Star Prism

North Star Prism tailors information about access and research for people at any stage of ALS. This four-part program provides clarity, guidance, and confidence to engage with personal care teams and research sites.

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News Guide

North Star News Guide consolidates and translates thelatest ALS research into a clear, contextualized, andjargon-free digital newsletter. From emerging clinical trial results to early stage discoveries, our monthly updates keep the community informed.

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Fast Facts

North Star Fast Facts provides quick, credible videoexplainers that cut through hype and clarify science—answering top of mind ALS community questions andaddressing misinformation before it spreads.

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Journal Club

North Star Journal Club invites ALS research experts to break down the latest studies, guide participants in understanding how to read scientific papers, and encourage critical thinking. The webinar and podcast feature lively discussions and a community Q&A.

Join the Club