Read the North Star ALS Medical Disclaimer
Clear research. Honest guidance.
About Us

We exist to empower people living with ALS and their families by making research understandable, accessible, and human-centered. Founded by people directly affected by ALS, North Star was created to close a critical gap: the lack of clear and unbiased research guidance. When it comes to research, we believe that understanding is care, and participation drives progress.

We contextualize science to offer clarity
and connect ALS families to research

Nadia S.
Linda M.
Lori A.
Lori H.
Co-Founder
Co-Founder
Board Member
Board Member
Meet The Team

We Are Guided By People
and Grounded by Science...

(Keep scrolling to see all values)

1

Human-Centered

We center the patient, always.

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Science exists to serve people, not the other way around. Every discovery, every data point, should ultimately improve lives and restore dignity to those most affected.

2

Truthful

We speak truthfully, even when it’s hard.

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Integrity means saying what’s real, not what’s easy. We believe transparency builds trust, and that truth is the foundation of meaningful progress.

3

Unbiased

We are independent; never biased by funding or agendas.

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Our work is driven by purpose. 
We stand apart from influence so that our findings remain pure, credible,
and grounded in evidence.

4

Accessible

We translate complex science into understandable insight.

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Knowledge has no impact unless it’s understood. We transform complexity into clarity, making science accessible to everyone it touches.

5

Collaborative

We push practical research forward together.

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Progress is not a solo pursuit. We bring scientists, patients, and communities together; because the future of medicine is built in partnership.