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North Star Prism

Illuminating Your Path to ALS Research Access

The North Star Prism webinars help people living with ALS navigate research opportunities, understand clinical trials, and make informed decisions—at every stage of their journey.

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About the Series

The Prism Series was co-created with people affected by ALS to make research participation easier to understand and more accessible. Whether you’re newly diagnosed or further along your journey, these sessions are designed to bring clarity, transparency, and confidence.

Program Breakdown

Prism One
Navigating Early Research Decisions

Aimed at those newly diagnosed or in the first stages of ALS, this session explains how clinical trials work, how to find one that fits your needs, and how to contact research sites.

Prism Two
Research Access Beyond 18 Months

Focused on research and treatment access for people later in ALS, including investigational drugs, observational studies, and symptom-management trials.

Prism Workshop
Interactive Group Session

Offers deep dive into understanding trial listings,
contacting sites, and troubleshooting challenges to access.

Program Breakdown