Read the North Star ALS Medical Disclaimer
“Illuminate Precision Medicine” is a four-part series designed to empower the ALS community to understand precision medicine and the science driving better therapies. Content will be shared across:

Webinars

We will offer four webinars panel discussions that bring together different perspectives on how precision medicine is shaping ALS research.

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Podcasts

Deep conversations, each on a single topic relevant to precision medicine, from genetics to biomarkers to the lived experience.

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Social Media

Daily dose of educational content, keeping the conversation going, breaking down the science into clear, shareable pieces.

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This series explores the emerging role of precision medicine in ALS, helping the community build a shared understanding of the science shaping the next generation of treatments.

Webinar Dates

Part One: July 16, 2026 | Introduction to Precision Medicine

Part Two: August 4, 2026 | The Lived Experience

Part Three: August 20, 2026 | Research & Industry

Part Four: September 3, 2026 | The Pipeline

PART ONE

Introduction to Precision Medicine

Why Biology Matters

What is and what is not precision medicine?  Experts from ALS, oncology, and drug development share what it really takes to build better treatments: the biology, the lessons from cancer, the promise and limits of biomarkers, and who research leaves out.

PART TWO

The Lived Experience

The Human Side of Science

Behind every diagnosis is a person. This session gives voice to patients and caregivers navigating research and genetics, from families carrying known genetics to those with sporadic disease. It honors the weight of inherited risk, the uncertainty of a cause that can't be named, and the hope and challenges that run through both.

PART THREE

Research & Industry

Building Precision Therapies

An honest look at how precision therapies are actually built, funded, and moved toward patients. Researchers and industry discuss treatments built for a single patient to those targeting biology shared by most of the disease. The panel explores what makes these approaches different and how the right therapeutic tool gets matched to the right biology.

PART FOUR

The Pipeline

Looking Ahead

Our closing panel asks where ALS research and therapeutics are heading: how we might identify and treat ALS earlier, what more targeted drugs mean for the care of patients and those at risk, and the datasets that are the engine behind it all. We'll look at the progress underway and the challenges ahead in reaching everyone living with and at risk for ALS.